December 2015 – European Narcolepsy Network (EU-NN)
European Narcolepsy Network (EU-NN)
The core of the EU-NN is the database, which is growing by 20-50 new cases per month. So far, 1300 cases have been included. 858 cases had been validated by November and thus meet high quality standards.
213 prospective cases covering 2-4 visits over two years have been included so far. They show the natural course of the disease and the use of medication. Some features of the database have been updated. The Database Committee will prepare an update on the correct use of the database. Ramin Khatami has submitted a paper on “The European Narcolepsy network (EU-NN) database,” which has been accepted by JSR.
The EU-NN members are working to enhance the scientific output and have submitted several proposals to the Scientific Committee that will be discussed in January 2016. Many EU-NN members have attended the ESRS hosted Worldsleep 2015 meeting held in Istanbul in November. Members of the EU-NN had submitted two symposia that had been accepted.
The next European Narcolepsy Day, organized by Markku Partinen, will be held on 17 – 18 March 2016 in Helsinki. The program of the 7th European Narcolepsy Day will be disseminated in January. Everyone interested in narcolepsy and related fields, is invited to contribute and to come and join the EU-NN. There will be a Young Scientist in Narcolepsy Award, for which everyone interested in narcolepsy and hypersomnolences of central origin can apply (send applications to geert.mayer@hephata.com).
Geert Mayer, President of the EU-NN